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a b c d e f g h i j k l m n o p q r s t u v w x y z
AIDS/HIV
Florida Department of Health - AIDS/HIV
Okaloosa AIDS Support & Information
Tampa Bay AIDS Network
Central Florida AIDS Planning Consortium
Support for AIDS in the Florida Keys and Key West
USF Center for HIV Education and Research
HIVresource.org – Broward County Support Groups
Florida HIV Community Resource Directory (PDF)
HIV/AIDS Network of Sarasota (HANS)
AIDS Service Association of Pinellas (ASAP)
North Central Florida AIDS Network
NATIONAL RESOURCES
AIDS Support Groups
AIDS Healthcare Foundation
World AIDS Campaign
Teen AIDS Peer Corps
HIV/AIDS-Web Central
HIV Anonymous
amFAR-The Foundation for AIDS Research
National Long Term Survivors Group (UK)
Children With AIDS Project
Internet Public Library-AIDS
(back to the top)
Albinism/ Hypopigmnetation
NATIONAL RESOURCES
National Organization for Albinism & Hypopigmnetation
International Albinism Center
Albinism World Alliance
Facts About Albinism
How Albinism Works
Atlanta Journal Constitution: Albinism Information
PanAmerican Society for Pigment Cell Research
(back to the top)
Alcohol/Drug Abuse
Phoenix House Florida
ACT Center
FL Department of Children and Families – Substance Abuse
University of Tampa Assistance and Support for Drug Abuse
Ambrosia Substance Abuse Treatment Center
Florida Substance Abuse Resources
Support Groups in Pinellas County
NATIONAL RESOURCES
Adcare Hosiptal of Worcester, Inc.
National Organization on Fetal Alcohol Syndrome
(back to the top)
Alzheimer’s Disease
Alzheimer’s Family Organization-Central Florida
FL Department of Elder Affairs-Alzheimer’s Disease Initiative
Alzheimer’s Association-Florida Gulf Coast Chapter
Alzheimer’s & Dementia Support Groups in Pinellas County
Alzheimer’s Support Network - Naples
Alzheimer’s Association – Central & North Florida Chapter
Alzheimer’s Association – Southeast Florida Chapter
Alzheimer’s Family Services - Pensacola
USF Suncoast Alzheimer’s & Gerontology Center
Alzheimer’s Support Incorporated - Ocala
University of Florida - AlzOnline
NATIONAL RESOURCES
Alzheimer’s Association
Alzheimer’s Foundation of America
National Institute on Aging – Alzheimer’s Disease Education & Referral
(back to the top)
Amputee
Florida Amputee Support Groups
Tropical Amps – Miami & South Florida Amputee Support Group
UpperEx.com – Florida Amputee Support Groups
NATIONAL RESOURCES
Child Amputee Home Page
Amputee Coalition of America
Amputee Support Sites
The Barr Foundation
(back to the top)
Arthritis
Arthritis Foundation – Florida Chapter
Arthritis Support Group of South Lake County
FL Department of Health – Arthritis Program
NATIONAL RESOURCES
Arthritis Foundation
(back to the top)
Asperger Syndrome
See also Autism
O.A.S.I.S. (Online Asperger Syndrome Information and Support) - Florida Support Groups
Just for the Cause – Titusville Support Group
Florida Aspergers Network and Support Group (FANS.org) – Online Support Group on Yahoo
Orlando Adults Asperger’s Syndrome Social Meetup Group
NATIONAL RESOURCES
NINDS Asperger Syndrome Information Page
Aspergers Syndrome
Autism Society-What’s Unique About Aspergers Syndrome?
Aspergers Syndrome Support Network
The Alexis Foundation
Autism Asperger Publishing Company (AAPC)
Aspergerinfo.com
Asperger Foundation International
Asperger Syndrome Education Network (ASPEN)
(back to the top)
Assistive Technology
Assistive Technology Educational Network of Florida (ATEN)
Florida Alliance for Assistive Services and Technology (FAAST)
Assistive Technology – Miami-Dade Public Schools
Miami-Dade Assistive Technology Awareness Partners
NATIONAL RESOURCES
AbilityHub
ABLEDATA
Assistive Technology Solutions (ATS)
EASI - Equal Access to Software and Information
EnableMart-Assistive Technology Store
ABILITY Magazine
Alliance for Technology Access
Business Week-Assistive Technology Archive
Closing the Gap
The Family Center on Technology and Disability
Infinitec: Infinite Potential through Assistive Technology
Information Technology Technical Assistance and Training Center
Public School's Special Education System: Funding Source for Assistive Technology
The Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)
Assistive Technology Online Project
(back to the top)
Attention Deficit Disorder
CHADD-Florida Chapters
ADD Meetup Groups - Miami
ADD Meetup Group – Tampa Bay
ADD/ADHD Meetup Group - Orlando
Adult ADHD Support Groups in Florida
See also Learning Disabilities
NATIONAL RESOURCES
CHADD
ADD Association
OneADDPlace.com
About.com-ADD/ADHD
(back to the top)
Autism
See also Aspergers Syndrome
Autism Society of Florida
National Autism Association FL Chapter (website coming soon!)
Tallahassee Autism Support Coalition (T*A*S*C*)
Autism Recovery Network of Florida
Central Florida Autism Institute
The John Maxwell Biasco Foundation For Children with Autism
Autism Speaks – Florida Resources
Autism Speaks – Florida News
Center for Autism and Related Disorders (CARD):
CARD Florida State University
CARD University of Central Florida
CARD University of Florida
CARD University of Miami
CARD University of South Florida
NATIONAL RESOURCES
Autism Speaks
WrongPlanet.net
National Autism Association
National Institute of Mental Health (NIMH)-Autism
Autism Fact Sheet
Autism on the Seas
PlanetAutism.com
(back to the top)
Blindness and Visual Impairments
Collier County Association for the Blind
Conklin Centers for the Blind
Florida School for the Deaf and the Blind
Lighthouse of the Blind
Florida Center for the Blind
Tampa Lighthouse
Miami Lighthouse
Lighthouse of Pinellas
Lighthouse for the Blind of the Palm Beaches
NATIONAL RESOURCES
New York Institute for Special Education-Blindness Resources
BLIST: Blindness Related Email Lists
V.I. Guide
National Eye Institute
The Hatlen Center for the Blind
American Foundation for the Blind
Internet Public Library-Vision & Eye Conditions
Council of Citizens with Low Vision International
American Academy of Ophthalmology
Prevent Blindness America
(back to the top)
Bipolar Disorder
Child & Adolescent Bipolar Foundation-FL Support Groups
Tampa Bay Support Groups
Bipolar Support Groups in Pinellas County
Depression and Bipolar Support Alliance Florida
Depression and Bipolar Support Alliance South Florida
Orlando Area Bipolar Meetup Groups
Tampa Bay People with Bipolar Meetup Group
Miami Area Bipolar Meetup Groups
Goldcoast Depression and Bipolar Support Alliance – Broward County
Depression and Bipolar Support Alliance - Jacksonville
NATIONAL RESOURCES
Depression and Bipolar Support Alliance
Bipolar Support Groups
Teen Bipolar Support Group
The Bipolar Support Group
(back to the top)
Brain Injury
Brain Injury Association of Florida, Inc. (BIAF)
Florida Department of Health - Brain and Spinal Cord Injury Program
Orlando Brain Injury Support Group
NATIONAL RESOURCES
Brain Injury Association of America
Family Caregiver Alliance
Brain Injury Resource Center
The Perspectives Network
Traumatic Brain Injury Central
(back to the top)
Burns
Florida Burn Injury
Burn Survivor Resource Center – Florida Support Groups
Tampa General Hospital Regional Burn Center
NATIONAL RESOURCES
American Burn Association
Phoenix Society for Burn Survivors
Burn Survivor Resource Center
Flicker of Hope Foundation
BurnSurvivor.org
(back to the top)
Cancer
Florida Hospital Cancer Institute
Florida Hospital Cancer Support Groups
Gilda’ Club South Florida
Cancer Foundation of the Florida Keys
The Wellness Community of Southwest Florida
Florida Regional Cancer Centers
CancerFacts.com – Florida Support Groups
Florida Cancer Institute
Breast Cancer Network of Strength – South Florida Affiliate
TampaBayCancer.com – Tampa Support Groups
Osceola Cancer Center
University of Florida Shands Cancer Center
B.A.S.E. Camp – Children’s Cancer Foundation
Lee Memorial Health System Regional Cancer Center
Florida Hospital Altamonte Cancer Institute
Cancer Advocacy Center Southwest Florida
The Leukemia & Lymphoma Society of America – Florida Chapters
NATIONAL RESOURCES
American Cancer Society
CancerFacts.com
Mayo Clinic – Cancer Support Groups
Committed to a Cure – Breast Cancer
You Are Not Alone – Prostate Cancer Support Site
OVACOME – Ovarian Cancer Support & Advocacy
National Cancer Institute
Candlelighters – Children’s Cancer Foundation
The Leukemia & Lymphoma Society of America
(back to the top)
Cerebral Palsy
UCP of Central Florida
UCP of East Central Florida
UCP of North Florida
UCP of Northwest Florida
UCP of Sarasota-Manatee
UCP of South Florida
UCP of Tampa Bay
NATIONAL RESOURCES
Cerebral Palsy-A Guide for Care
Cerebral Palsy-Hope Through Research
SpeechTX
Cerebral Palsy-How Can I Help?
United Cerebral Palsy
KidsHealth-Cerebral Palsy
Cerebral Palsy Info Central
(back to the top)
Cleft Lip/Palate
Florida Cleft Palate-Craniofacial Association
Cleft Advocate – Florida Resources
University of Florida Craniofacial Center
UF College of Medicine-Jacksonville – Pediatric Cleft/Lip Palate
Miami Children’s Hospital Craniofacial Center
Florida Cleft and Craniofacial Network
NATIONAL RESOURCES
Cleft Advocate
National Craniofacial Association
Cleft Palate Foundation
(back to the top)
Communication Disorders
See also Deafness and Hearing Impairments, Speech Disorders
Florida Association of Speech-Language Pathologists and Audiologists
Florida Telecommunications Relay
Aphasia FL Support Groups
Florida Yahoo Apraxia Online Support Group
NATIONAL RESOURCES
American Speech-Language-Hearing Association (ASHA)
International Association of Laryngectomees
National Institute on Deafness and other Communication Disorders
The Childhood Apraxia of Speech Association of North America (CASANA)
(back to the top)
Cystic Fibrosis
Cystic Fibrosis Foundation-Florida Chapters
CF Centers in Florida
Nemours Cystic Fibrosis Clinic-Orlando
NATIONAL RESOURCES
Canadian Cystic Fibrosis Foundation
Cystic Fibrosis Information
Cystic Fibrosis Center at Stanford
Cystic Fibrosis Foundation
Cystic Fibrosis-What You Need to Know
CF Living
(back to the top)
Deaf-Blindness
See Communication Disorders
Florida State Resources for the Deaf-Blind
Catholic Ministry for the Deaf and Blind
Florida Outreach Project
NATIONAL RESOURCES
National Consortium on Deaf-Blindness
Deaf-Blind Children
Helen Keller National Center
National Family Association for Deaf-Blind
(back to the top)
Deafness and Hearing Impairments
Florida Association for the Deaf
Florida Dog Guides For The Deaf
Florida School for the Deaf and the Blind
Central Florida Deaf Services
Florida Coordinating Council for the Deaf and Hard of Hearing
Deaf Service Center of SW FL
Deaf Service Bureau of West Central Florida
Florida Deaf Network
NATIONAL RESOURCES
About.com-Deafness
Families With Deaf Children
National Association of the Deaf
National Deaf Education Project
Deaf Women United
National Black Deaf Advocates
(back to the top)
Developmental Disabilities
See also General, Multi-Service Agencies
ARC Florida
ARC Alachua County
Hope Center
Florida Developmental Disabilities Council
NATIONAL RESOURCES
The ARC
Eunice Kennedy Shriver Center
Understanding Developmental Disabilities
North Bay Regional Center
Center for Disease Control: National Center on Birth Defects and Developmental Disabilities
National Association of Councils on Developmental Disabilities
The President’s Committee for People with Intellectual Disabilities
American Association of Intellectual and Developmental Disabilities (AAIDD)
(back to the top)
Diabetes
Florida Diabetes Control Program
Florida Diabetes Camp
Florida Hospital Support Groups
Baptist Health South Florida-Diabetes Support Groups
NATIONAL RESOURCES
American Diabetes Association
Children with Diabetes Online Community
Diabetes.com
Juvenile Diabetes Research Foundation
National Institute of Diabetes and Digestive and Kidney Diseases
Online Diabetes Resources
Children with DIABETES
(back to the top)
Down Syndrome
Broward Gold Coast Down Syndrome Organization
Down Syndrome Association of Central Florida
PODS Angels Support Foundation
Families Exploring Down Syndrome (FEDS) of Brevard
Down Syndrome Support – South Florida
Down Syndrome Association of Tallahassee
F.R.I.E.N.D.S Down Syndrome
PC Downies
NATIONAL RESOURCES
Down Syndrome-Health Issues
Down Syndrome Online Resources
Downs City
National Down Syndrome Congress
National Down Syndrome Society
Riverbend Down Syndrome Parent Support Group
UPSIDE!
Bringing Up Down Syndrome
Down Syndrome Information Guide
Up With Down
Triangle Down Syndrome Network
(back to the top)
Dwarfism
NATIONAL RESOURCES
Dwarfism: Frequently Asked Questions
Little People of America
Billy Barty Foundation
Human Growth Foundation
Magic Foundation
Dwarf Athletic Association of America
Little People Research Fund, Inc.
Education.com - Dwarfism
Short Persons Support
(back to the top)
Dyslexia
International Dyslexia Foundation Florida Branch
Dyslexia Research Institute
Florida Center for Reading Research
NATIONAL RESOURCES
Dyslexia Organisation (UK)
International Dyslexia Association
Dyslexia Talk-Online Support Group
Information and Resources for Dyslexia
Education.com – Understanding Dyslexia
Dyslexia Club Online Support Group on Yahoo
Dyslexia Support Online Support Group on Yahoo
Davis Dyslexia FAQ
(back to the top)
Dysphagia
NATIONAL RESOURCES
Dysphagia Resource Center
Elseiver.com - Dysphagia
Mayo Clinic – Swallowing Problems
Dysphagia & MS
(back to the top)
Employment
Florida Division of Vocational Rehabilitation
Supported Employment in Florida
Local Resources for Employment of People with Disabilities in Florida
FL Association for Persons in Supported Employment
NATIONAL RESOURCES
The Employer Assistance & Recruiting Network (EARN)
US Department of Labor
Job Accommodation Network (JAN)
Partners in Employment
The Red Book
Social Security Administration
US Equal Employment Opportunity Commission
Rehabilitation Research and Training Center on Workplace Supporters and Job Retention
Employment Support Institute
NISH
Office of Disability Employment Policy (ODEP)
(back to the top)
Epilepsy
Epilepsy Association of Central Florida
Epilepsy Services of West Central Florida, Inc. (ESWCF)
Suncoast Epilepsy Association (SEA)
NATIONAL RESOURCES
American Epilepsy Society
Cure Epilepsy
KidsHealth-Epilepsy
Epilepsy Foundation
The Epilepsy Foundation-Australia
Ketogenic Diet-Stanford Medical Center
Epilepsy Information Page
(back to the top)
Facioscapulohumeral Muscular Dystrophy
NATIONAL RESOURCES
Facioscapulohumeral Society
(back to the top)
Fibromyalgia
Florida Support Groups
North Tampa Fibromyalgia Meetup Group
Altamonte Springs Fibromyalgia Meetup Group
Fibromyalgia Outreach Foundation Meetup Group
Orlando/Central Florida Fibromyalgia Meetup Group
NATIONAL RESOURCES
National Fibromyalgia Association
Fibromyalgia, MARRTC Page
Fibromyalgia And Caring Friends
Fibromyalgia Book Store
Fibromyalgia Online Support Group
(back to the top)
Fragile X Syndrome
Conquer Fragile X, Inc.
NATIONAL RESOURCES
Carolina Fragile X Project
Fragile X Research Foundation
National Fragile X Foundation
Fragile X Syndrome Online Support Group on Yahoo
Care Place Fragile X Syndrome Online Support Group
Genetics Home Reference: Fragile X Syndrome Information
Eunice Kennedy Shriver National Institute of Child Health and Human Development – Fragile X Syndrome Information
eMedicine: Fragile X Syndrome
University of Michigan Health System – Fragile X Syndrome
Families and Fragile X Syndrome (PDF)
(back to the top)
Guillain-Barre Syndrome
NATIONAL RESOURCES
Guillain-Barre (gbs.org)
GBS/CIDP Foundation International
Guillain-Barre Syndrome Support Group of the UK
Healthline – Guillain-Barre Syndrome Information
(back to the top)
Health (General)
Florida Department of Health and Human Services
NATIONAL RESOURCES
The Alternative Medicine Homepage
Health A to Z
National Institutes of Health
Healthfinder.gov
Mayo Clinic
Consumer and Patient Health Information
MERCK Manual
National Center for Complementary and Alternative Medicine
New York Online Access to Health (NOAH)
For Parents of Sick and Worn-Out Children
HealthAtoZ
Healthline
MedlinePlus
Family Guide
Nutrition Information
(back to the top)
Heart Disorders
American Heart Association - Florida Chapters
Mended Hearts (Fort Lauderdale)
Mended Hearts (Jacksonville)
Mended Hearts of Naples
NATIONAL RESOURCES
American College of Cardiology
American Heart Association
Living With Heart Disease
National Heart, Lung and Blood Institute
Congenital Heart Information Network
PediHeart
(back to the top)
Hemophilia
Hemophilia Foundation of Greater Florida
Florida Hemophilia Association
NATIONAL RESOURCES
Hemophilia, Hereditary Blood Disorders
National Hemophilia Foundation
World Federation of Hemophilia
(back to the top)
Huntington's Disease
Huntington's Disease Society of America South FL Chapter
USF HD Center of Excellence
Florida Huntington’s Disease Resources
HD Florida Support Groups
BAMI – Florida Huntington’s Disease Support Groups
NATIONAL RESOURCES
Caring For People With Huntington’s Disease
Hereditary Disease Foundation
Huntington’s Disease Society of America
Huntington’s Disease Advocacy Center
Huntington’s Disease Information
Huntington’s Disease Online Support Group on Yahoo
(back to the top)
Inclusion/Independent (Community) Living
South Florida Center for Independent Living (CIL)
Center for Independent Living in Central Florida
Center for Independent Living of Southwest Florida
Center for Independent Living of North Central Florida
Center for Independent Living of Northwest Florida
Independent Living Resource Center of Northeast Florida
Center for Independent Living of Broward
Florida Independent Living Council
Florida Association of Centers for Independent Living, Inc.
Habitat for Humanity-Florida Chapters
Florida Inclusion Network
Florida Center for Inclusive Communities
NATIONAL RESOURCES
Institute for Human Centered Design-Adaptive Environments
Americans Disabled for Attendant Programs Today (ADAPT)
The Center for an Accessible Society
Center for Housing and New Community Economics (CHANCE)
Center for Neighborhood Technology
The Center on Human Policy-Syracuse University
The Center for Universal Design
The Community Imperative
Connections for Information and Resources on Community Living (CIRCL)
New Horizons Un-Limited, Inc.
Inclusion Daily Express
Independent Living Research Utilization
United States Access Board
United We Ride
World Institute on Disability
Inclusion of Students with Special Needs
(back to the top)
Kidney Disease
National Kidney Foundation of Florida
Pinellas County Kidney Disease Resources
NATIONAL RESOURCES
American Association of Kidney Patients
National Kidney Foundation
American Kidney Fund
PKD Foundation for Research in Polycystic Kidney Disease
WebMD: Kidney Disorders Online Support Group
World Kidney Foundation
DaVita Discussion Forums: General Dialysis Online Support Group
Friends and Kidney Support Online Support Group on Yahoo
Kidney Friends Online Support Group on Yahoo
Kidney Fun Online Community Forums/Support Group
Renal Support Network
Kidney & Urology Foundation of America
(back to the top)
Learning Disabilities
See also Attention Deficit Disorder
Practitioners' Task Force on Adults with Learning Disabilities
Florida State Resources (NALLD)
Florida State Resources (LD OnLine)
Learning Disabilities Association of Florida
NATIONAL RESOURCES
LD Online
LD Resources
Learning Disabilities Association of America
National Center for Learning Disabilities
NLD Online
Great Schools-Schwab Learning Parents
(back to the top)
Liver Disease
American Liver Foundation – Gulf Coast Chapter
Gulf Coast Liver Disease Support Groups
Pinellas County Liver Disease Resources
NATIONAL RESOURCES
American Liver Foundation
Liver Families
Children’s Liver Association for Support Services (CLASS)
LiverSupport.com
(back to the top)
Lou Gherig’s Disease/ALS
ALS Association-Lou Gherig’s Disease-Florida Chapter
University of Miami ALS Clinical and Research Center
NATIONAL RESOURCES
ALS Association
Project ALS
Eleanor & Lou Gherig MDA/ALS Research Center
Packard Center
(back to the top)
Lung Disease
American Lung Association of Florida
Morton Plant Mease Lung Center
Pensacola Lung Group
NATIONAL RESOURCES
American Lung Association
Huff-n-Puff Online Discussion Forums
(back to the top)
Lupus
Lupus Foundation of America (LFA) - Greater Florida Chapter
Baptist Health South Florida-Lupus Support Group
NATIONAL RESOURCES
NIAMS-Lupus
Lupus Foundation of America
KidsHealth-Lupus
Arthritis Foundation-Lupus
(back to the top)
Mental Illness
Mental Health Association of Collier County
National Alliance on Mental Illness (NAMI) Florida
NAMI Manatee County
NAMI Hernando
NAMI Greater Orlando
Mental Health America of Northeast Florida
Mental Health Community Centers, Inc.
Florida Mental Health Institute
NATIONAL RESOURCES
American Academy of Child & Adolescent Psychiatry
American Psychological Association
American Psychiatric Association
Bazelon Center for Mental Health Law
Handling Your Mental Illness at Work and School
Internet Mental Health
National Mental Health Information Center
MentalHelo.net
National Alliance on Mental Illness (NAMI)
Psych Central
Mental Help Net
(back to the top)
Mental Retardation
See Developmental Disabilities
Migraine Headaches
National Headache Foundation – Florida Support Groups
FloridaHealthFinder.gov – Migraine Information
NATIONAL RESOURCES
Migraine Headache Disability & Impairment
National Headache Foundation
Online Migraine Support Groups
National Migraine Association
Migraine Solutions
MyMigraineConnection.com
American Headache Society
American Headache Society Committee for Headache Education
The Migraine Head Center
World Headache Alliance
(back to the top)
Multi-Service Agencies
Abilities of Florida
Easter Seals Florida
Easter Seals Volusia & Flagler Counties
Easter Seals South Florida
Easter Seals Southwest Florida
Miami-Dade Department of Human Services - Disability Services
Florida Agency for Persons with Disabilities (APD) – Area Offices
Advocacy Center for Persons with Disabilities
NATIONAL RESOURCES
National Rehabilitation Information Center
(back to the top)
Multiple Sclerosis
National Multiple Sclerosis Society-Mid Florida Chapter
National Multiple Sclerosis Society-North Florida Chapter
National Multiple Sclerosis Society-South Florida Chapter
NATIONAL RESOURCES
Computer Literate Advocates for Multiple Sclerosis (CLAMS)
MS Crossroads
MS World
Multiple Sclerosis Association of America
Multiple Sclerosis Information Page
Multiple Sclerosis Foundation
National MS Society
(back to the top)
Nervous System/Coordination
Florida Hospital Neuroscience Institute
Ataxia Florida Support Groups
NATIONAL RESOURCES
About.com-Brain and Nervous System Disorders
Central Nervous System Diseases
National Institute of Neurological Disorders & Stroke (NINDS)
(back to the top)
Parkinson's Disease
Florida Hospital-Parkinson’s Disease
National Parkinson’s Foundation-Florida Chapters
American Parkinson’s Disease Association-South FL Chapter
NATIONAL RESOURCES
Michael J Fox Foundation for Parkinson’s Research
Parkinson’s Disease Information
Parkinson’s Disease-Hope Through Research
Parkinson’s Disease Foundation
(back to the top)
Phenyleketonuria (PKU)
FloridaPKU.com
PKU of Florida
NATIONAL RESOURCES
PKU News
Save Babies - PKU
PKU-Allied Disorders
PKU.com
Children’s PKU Network
National PKU Alliance
PKU-Newborn Screening
(back to the top)
Polio
Post Polio Support Group of Palm Beach County
North Central Florida Post Polio Support Group
Post Polio Support Group of Charlotte County
Florida East Coast Post Polio Support Group
NATIONAL RESOURCES
Polio Experience Network
Post Polio Task Force Information Center
Polio Epic, Inc.
Post Polio Support
Polio Information Center Online
International Post Polio Support Organization
Polio Connection of America
PostPolio.org
(back to the top)
Prader-Willi Syndrome
Prader-Willi Syndrome Association
NATIONAL RESOURCES
Prader-Willi Syndrome Information
Prader-Willi Syndrome Association (UK)
Prader-Willi Syndrome Online Support Group on Yahoo
PositivelyPWS Online Support Group on Yahoo
The Genetics of Prader-Willi Syndrome
The International Prader-Willi Syndrome Organization
(back to the top)
Rare Diseases/Disorders
NATIONAL RESOURCES
National Organization for Rare Disorders (NORD)
National Institute of Health-Rare Disease Information
Rare Disease Clinical Research Network
NORD Rare Disease Support Community
(back to the top)
Restless Leg Syndrome
Restless in JAX
Spring Hill Restless Leg Syndrome Support Group
NATIONAL RESOURCES
Restless Legs Syndrome Foundation
Restless Leg Syndrome Fact Sheet
(back to the top)
Rett Syndrome
NATIONAL RESOURCES
International Rett Syndrome Foundation
Southeastern Rett Syndrome Alliance
Rett Syndrome Research Foundation
Rett Syndrome Magazine
Rett Syndrome Fact Sheet
Rett Syndrome Parents Online Support Group on Yahoo
Club Rett: Online Support Group for Adults with Rett Syndrome
Rett Angels
(back to the top)
Self-Determination
Florida Grassroots Self-Advocacy
Practical Strategies for Developing Self-Determination Skills
Florida's Self-Determination Initiative
NATIONAL RESOURCES
Axis Disability Rights
Center for Self-Determination
Cornell University, ILR School, Employment and Disability Institute
Disability Advocacy
It's My Life: Corporation for Public Broadcasting
NCSET - Self-Determination for Middle and High School Students
New Directions: My Life Going F.A.R.
North Carolina Council on Developmental Disabilities/Self-Determination
The Nth Degree
Self Advocates Becoming Empowered
Youths 4 Advocacy
Self-Determination Synthesis Project
(back to the top)
Shaken Baby Syndrome
Prevent Shaken Baby Syndrome
University of Miami – Shaken Baby Syndrome
FL Department of Health and Human Services – Preventing Shaken Baby Syndrome
NATIONAL RESOURCES
Shaken Baby Alliance
National Center on Shaken Baby Syndrome
National Shaken Baby Coalition
Shaken Baby Syndrome Resource Center
SBS Central
(back to the top)
Smith-Magenis Syndrome
NATIONAL RESOURCES
Smith-Magenis Syndrome
PRISMS: Smith-Magenis Support Group
Smith-Magenis Online Support Group on Yahoo
(back to the top)
Speech Impairments
See also Communication Disorders
Florida Association of Speech-Language Pathologists & Audiologists (FLSHA)
(back to the top)
Spina Bifida
Spina Bifida Association of Central Florida
Nemours-Spina Bifida Programs in Florida
Spina Bifida Association-Clinics in Florida
NATIONAL RESOURCES
Association for Spina Bifida Hydrocephalus
Children and Adults with Spina Bifida & Hydrocephalus
International Federation for Spina Bifida & Hydrocephalus
Spina Bifida Association
(back to the top)
Spinal Cord Injury
Florida Department of Health - Brain and Spinal Cord Injury Program
Florida Spinal Cord Injury Resource Center
NATIONAL RESOURCES
Spinal Cord Injury Information Network
Canadian Paraplegic Association
Foundation for Spinal Cord Injury Prevention, Care & Cure
Informed Consumer's Guide to Assistive Technology for People with Spinal Cord Injuries
Paralyzed Veterans of America
National Spinal Cord Injury Association
Northwest Regional Spinal Cord Injury System
APACURE Spinal Cord Information
Spinal Cord Research Centre-University of Manitoba
Craig Hospital
Mount Sinai Spinal Cord Injury Model System
Spinal Cord Injury Program at Santa Clara Valley Medical Center
Shepherd Center
U-M Model Spinal Cord Injury Care System-University of Michigan
The Spinal Cord Information Pages
(back to the top)
Spinal Muscular Atrophy
NATIONAL RESOURCES
Families of Spinal Muscular Atrophy
Spinal Muscular Atrophy Information Page
GeneReviews.com-Spinal Muscular Atrophy
(back to the top)
Stroke
YES-Stroke Support Group, Miami
Stroke Support Groups, Pinellas County
NATIONAL RESOURCES
The Stroke Network
Post Stroke Rehabilitation Fact Sheet
American Stroke Association
National Stroke Association
(back to the top)
Stuttering
National Stuttering Association-Florida Support Groups
NATIONAL RESOURCES
The National Center for Stuttering
National Stuttering Association
Stuttering Therapy and Support Groups
Online Stuttering Support Group
The Stuttering Foundation
(back to the top)
Tourette Syndrome
Tourette Syndrome Association of Florida
NATIONAL RESOURCES
The Facts About Tourette Syndrome
Tourette Syndrome Information Page
Tourette Syndrome Association
Tourette Syndrome “Plus”
Tourette’s Disorder
Internet Public Library-Tourette Syndrome
(back to the top)
Transverse Myelitis
The Florida Tranverse Myelitis Support Group
NATIONAL RESOURCES
Transverse Myelitis Association
Transverse Myelitis Center at John Hopkins
Transverse Myelitis Information Page
MedHelp-Transverse Myelitis
(back to the top)
Turner Syndrome
NATIONAL RESOURCES
Turner Syndrome-General Information
NICHD - Turner Syndrome
WebMD-Turner Syndrome
Turner Syndrome Online Support Group on Yahoo
Turner Syndrome Society of Canada
Health.com – Turner Syndrome
(back to the top)
VCFS/22q11 (DiGeorge)
Florida VCFS/22q11 Online Support Group on Yahoo
NATIONAL RESOURCES
Treating Children with DiGeorge/VCFS-Children’s Hospital of Philadelphia
International 22q11.2 Deletion Syndrome Foundation
Velo Cardio Facial Syndrome Education Foundation
Chromosome 22q Central
(back to the top)
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